Critical Dementia Network

54 resources
Posted: December 23, 2022

Preventing the institutionalization of people with dementia and Assessing an assisted-living or long-term care institution

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Abstract In a 2021 poll by the National Institute on Aging, 97% of Canadian seniors said they did not want to live in a long-term-care facility (a nursing home). Many long-term-care residents do not need to be in institutions, whose numerous drawbacks were exposed during the COVID-19 pandemic. Residents are there because they cannot receive… Read more »

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Posted: November 26, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

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Abstract Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

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Posted: November 17, 2022

Grappling with the concept of “aggressive behavior” among people with dementia

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Description ‘Aggressive behavior among dementia patients’ is seen as a major concern in nursing homes because of its stressful impact on caregivers. Geriatric-medicine literature defines ‘aggressive behavior’ as hitting, kicking, and screaming. Caregivers are advised to ‘manage’ this ‘behavior’ through a variety of strategies: identifying and removing environmental triggers, behavior modification, reassurance and distraction, and… Read more »

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Posted: November 17, 2022

“Power, Agency, Aging, and Cognitive Impairment: The Stories of Two Women”

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Abstract All of us get old if we are lucky, and disability is a natural part of human variation across the lifespan. Early in her life, Susan* was labelled with developmental disability but, unlike many other disabled people who were born during the mid-twentieth century, she grew up within her family, not in an institution…. Read more »

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Posted: November 17, 2022

How COVID-19 challenges connectedness among family caregivers and residents in North American nursing homes: Reflections on stories in a co-created ethnography

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Description COVID infection-control measures have fragmented connectedness between nursing-home residents and family members. Although nursing homes have creatively tried to maintain connections, these efforts don’t replace the intimacy of physical presence and touch. You can listen to and watch the presentation here: https://www.youtube.com/watch?v=9P4dCAA7uK8

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Posted: November 17, 2022

Non-institutional alternatives to nursing homes already exist

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Description Most Canadians who died of Covid-19 lived in nursing homes. Their deaths renewed calls for nursing-home reform. These institutions are the last resort when home care fails to deliver and family caregivers become overwhelmed. Since infections spread quickly in large institutions, why not replace them with non-profit, community-based alternatives? These have a long track… Read more »

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Posted: November 17, 2022

‘Saying goodbye’, but when and how? The dying process in nursing homes from the perspectives of residents, family members and staff

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Description In this presentation, we explore the complexity and opportunities inherent in the dying process within nursing homes. We reflect on these questions using stories from our observations as family members, and as disability and nursing researchers.

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Posted: November 17, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

,

Description Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

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Posted: November 17, 2022

Preventing the institutionalization of people with dementia and Assessing an assisted-living or long-term care institution

Margaret Oldfield
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Abstract In a 2021 poll by the National Institute on Aging, 97% of Canadian seniors said they did not want to live in a long-term-care facility (a nursing home). Many long-term-care residents do not need to be in institutions, whose numerous drawbacks were exposed during the COVID-19 pandemic. Residents are there because they cannot receive… Read more »

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assignmentView this resource