32 resources
This paper explores the possibility of reparations for harms suffered by people in residential aged care, focusing on experiences of people with dementia. We first explain how systemic and structural harms occur within residential aged care and outline how they constitute human rights violations. Published in the Health and Human Rights Journal (28 June 2022).
In this article I explore three types of time in the daily life of a North American nursing home. The first type is institutional time, the dominant force structuring daily life for both staff and residents. The second type is residents’ time, which is how residents would prefer to structure their daily lives. Both the… Read more »
Launched amid the COVID-19 pandemic, Reimagining Dementia: A Creative Coalition for Justice is committed to shifting the culture of dementia care from centralized control, safety, isolation, and punitive interventions to a culture of inclusion, creativity, justice, and respect. “Drawing on the emancipatory power of the imagination with the arts (e.g., theatre, improvisation, music), and grounded… Read more »
This paper develops a sociological critique of the pre-eminence of humanism in dementia care policy and practice. Throughout the centuries, humanism has served as something of a double-edged sword in relation to the care and treatment of people living with progressive neurocognitive conditions. On the one hand, humanism has provided an intellectual vehicle for recognising… Read more »
In dementia care, it is rarely questioned that the condition signals a breakdown in normative communicative competence that diminishes and finally renders the subjectivity of the sufferer beyond reach. More radical approaches may explore beyond verbal capacity to elicit a recognisable interaction through the use of music, touch, and movement, but could queering dementia offer… Read more »
Abstract Sociological analyses of dementia have long drawn on critiques of medicalisation and the medical model. This approach fails to account for late 20th/early 21st century expansion of neuropsychiatric biopolitics, wherein a more subtle and pervasive (self-)governance of health, illness, and life itself is at stake. Since the 1970s, new neuropsychiatric imaginings of dementia have… Read more »
Open access paper at: https://onlinelibrary.wiley.com/doi/full/10.1111/1467-9566.13280
Abstract Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia… Read more »