Knowledge Exchange

5 items

Posted: November 17, 2022

“Power, Agency, Aging, and Cognitive Impairment: The Stories of Two Women”

Abstract All of us get old if we are lucky, and disability is a natural part of human variation across the lifespan. Early in her life, Susan* was labelled with developmental disability but, unlike many other disabled people who were born during the mid-twentieth century, she grew up within her family, not in an institution…. Read more »

Posted: November 17, 2022

“Nothing About Us Without Us”: Involving People with Dementia in Qualitative Research”

Margaret Oldfield

Abstract People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting them into studies as participants, researchers often use surrogates-family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research. The article is available at

Posted: November 22, 2021

The Neuropsychiatric Biopolitics of Dementia and its Ethnicity Problem

Maria Zubair

Abstract Sociological analyses of dementia have long drawn on critiques of medicalisation and the medical model. This approach fails to account for late 20th/early 21st century expansion of neuropsychiatric biopolitics, wherein a more subtle and pervasive (self-)governance of health, illness, and life itself is at stake. Since the 1970s, new neuropsychiatric imaginings of dementia have… Read more »

Posted: November 22, 2021

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

Abstract Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia… Read more »