Social Care

19 items

Posted: December 23, 2022

Preventing the institutionalization of people with dementia and Assessing an assisted-living or long-term care institution


Abstract In a 2021 poll by the National Institute on Aging, 97% of Canadian seniors said they did not want to live in a long-term-care facility (a nursing home). Many long-term-care residents do not need to be in institutions, whose numerous drawbacks were exposed during the COVID-19 pandemic. Residents are there because they cannot receive… Read more »

Posted: November 26, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

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Abstract Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

Posted: November 17, 2022

Grappling with the concept of “aggressive behavior” among people with dementia

Description ‘Aggressive behavior among dementia patients’ is seen as a major concern in nursing homes because of its stressful impact on caregivers. Geriatric-medicine literature defines ‘aggressive behavior’ as hitting, kicking, and screaming. Caregivers are advised to ‘manage’ this ‘behavior’ through a variety of strategies: identifying and removing environmental triggers, behavior modification, reassurance and distraction, and… Read more »

Posted: November 17, 2022

How COVID-19 challenges connectedness among family caregivers and residents in North American nursing homes: Reflections on stories in a co-created ethnography

Description COVID infection-control measures have fragmented connectedness between nursing-home residents and family members. Although nursing homes have creatively tried to maintain connections, these efforts don’t replace the intimacy of physical presence and touch. You can listen to and watch the presentation here:

Posted: November 17, 2022

‘Saying goodbye’, but when and how? The dying process in nursing homes from the perspectives of residents, family members and staff


Description In this presentation, we explore the complexity and opportunities inherent in the dying process within nursing homes. We reflect on these questions using stories from our observations as family members, and as disability and nursing researchers.

Posted: July 5, 2022

Reparations for Harms Experienced in Residential Aged Care

Linda Steele + Kate Swaffer

This paper explores the possibility of reparations for harms suffered by people in residential aged care, focusing on experiences of people with dementia. We first explain how systemic and structural harms occur within residential aged care and outline how they constitute human rights violations. Published in the Health and Human Rights Journal (28 June 2022).

Posted: December 7, 2021

You have to wait – Time as an Instrument of Power in a North American Nursing Home

Margaret Oldfield

In this article I explore three types of time in the daily life of a North American nursing home. The first type is institutional time, the dominant force structuring daily life for both staff and residents. The second type is residents’ time, which is how residents would prefer to structure their daily lives. Both the… Read more »

Posted: November 22, 2021

The Neuropsychiatric Biopolitics of Dementia and its Ethnicity Problem

Maria Zubair

Abstract Sociological analyses of dementia have long drawn on critiques of medicalisation and the medical model. This approach fails to account for late 20th/early 21st century expansion of neuropsychiatric biopolitics, wherein a more subtle and pervasive (self-)governance of health, illness, and life itself is at stake. Since the 1970s, new neuropsychiatric imaginings of dementia have… Read more »