Policy and Practice

22 items

Posted: April 8, 2025

A Roadmap of Noninstitutional Living Options for People with Dementia: “Don’t Fence Me In”

Margaret Oldfield

Abstract Canadians overwhelmingly do not want to live in long-term care institutions (LTCIs) when they age; yet many end up there for lack of home care, because family care partners burn out, or because they and their professional advisors are unaware of alternatives to institutions. Not only is institutional dementia care riven with problems, it… Read more »

Posted: December 6, 2024

Still here, still queer? Queer lives and subjectivities in dementia care

Linn Sandberg + Anna Siverskog

This article explores possibilities for the emergence of queer lives and queer subjectivities in dementia care, the meaning of being queer for people living in residential dementia care and how they relate to queer subjectivity. Our study, drawing on qualitative interviews with four people living in dementia care homes, show how being queer was associated… Read more »

file_downloadStill here still queer
Posted: December 23, 2022

Mild cognitive impairment in the workplace – Intro to an overlooked, emerging disability

Margaret Oldfield

Margaret Oldfield, Josephine Mcmurray, AnneMarie Levy, Rosemary Leslie, Lindsey Simpson Conference presentation: Disability and Work Canada 2022 (virtual) November 2022 DOI: 13140/RG.2.2.15612.62085

Posted: November 26, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

, ,

Abstract Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

file_download
Posted: November 17, 2022

Grappling with the concept of “aggressive behavior” among people with dementia

Description ‘Aggressive behavior among dementia patients’ is seen as a major concern in nursing homes because of its stressful impact on caregivers. Geriatric-medicine literature defines ‘aggressive behavior’ as hitting, kicking, and screaming. Caregivers are advised to ‘manage’ this ‘behavior’ through a variety of strategies: identifying and removing environmental triggers, behavior modification, reassurance and distraction, and… Read more »

file_download
Posted: November 17, 2022

“Power, Agency, Aging, and Cognitive Impairment: The Stories of Two Women”

Abstract All of us get old if we are lucky, and disability is a natural part of human variation across the lifespan. Early in her life, Susan* was labelled with developmental disability but, unlike many other disabled people who were born during the mid-twentieth century, she grew up within her family, not in an institution…. Read more »

file_download
Posted: November 17, 2022

Non-institutional alternatives to nursing homes already exist

Description Most Canadians who died of Covid-19 lived in nursing homes. Their deaths renewed calls for nursing-home reform. These institutions are the last resort when home care fails to deliver and family caregivers become overwhelmed. Since infections spread quickly in large institutions, why not replace them with non-profit, community-based alternatives? These have a long track… Read more »

file_download
Posted: November 17, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

,

Description Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

file_download
file_download