Research

26 items
Posted: December 6, 2024

Still here, still queer? Queer lives and subjectivities in dementia care

Linn Sandberg + Anna Siverskog
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This article explores possibilities for the emergence of queer lives and queer subjectivities in dementia care, the meaning of being queer for people living in residential dementia care and how they relate to queer subjectivity. Our study, drawing on qualitative interviews with four people living in dementia care homes, show how being queer was associated… Read more »

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Posted: October 18, 2023

A Critical History of Dementia Studies

Andrea Capstick + James Fletcher

“This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and… Read more »

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Posted: November 26, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

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Abstract Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

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Posted: November 17, 2022

“Power, Agency, Aging, and Cognitive Impairment: The Stories of Two Women”

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Abstract All of us get old if we are lucky, and disability is a natural part of human variation across the lifespan. Early in her life, Susan* was labelled with developmental disability but, unlike many other disabled people who were born during the mid-twentieth century, she grew up within her family, not in an institution…. Read more »

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Posted: November 17, 2022

‘Saying goodbye’, but when and how? The dying process in nursing homes from the perspectives of residents, family members and staff

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Description In this presentation, we explore the complexity and opportunities inherent in the dying process within nursing homes. We reflect on these questions using stories from our observations as family members, and as disability and nursing researchers.

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Posted: November 17, 2022

Nursing-home residents caring for each other: Challenging the care giver-recipient binary

,

Description Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »

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Posted: November 17, 2022

“Nothing About Us Without Us”: Involving People with Dementia in Qualitative Research”

Margaret Oldfield
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Abstract People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting them into studies as participants, researchers often use surrogates-family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research. The article is available at https://rdsjournal.org/index.php/journal/article/view/1034

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