25 items
“This book offers the first ever critical history of dementia studies. Focusing on the emergence of dementia studies as a discrete area of academic interest in the late 20th and early 21st centuries, it draws on critical theory to interrogate the very notion of dementia studies as an entity, shedding light on the affinities and… Read more »
Go to https://www.researchgate.net/profile/Margaret-Oldfield
Abstract Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »
Abstract All of us get old if we are lucky, and disability is a natural part of human variation across the lifespan. Early in her life, Susan* was labelled with developmental disability but, unlike many other disabled people who were born during the mid-twentieth century, she grew up within her family, not in an institution…. Read more »
Description In this presentation, we explore the complexity and opportunities inherent in the dying process within nursing homes. We reflect on these questions using stories from our observations as family members, and as disability and nursing researchers.
Description Care in nursing homes is often perceived as one-way: caregivers (staff and family) provide care, and residents receive it. Findings from my ongoing critical ethnography of a nursing home challenge this binary. Guided by critical disability studies and using observation, interviews, and reflection, the ethnography prioritizes the perspective of residents. Central to the ethnography… Read more »
Abstract People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting them into studies as participants, researchers often use surrogates-family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research. The article is available at https://rdsjournal.org/index.php/journal/article/view/1034
Open access paper at: https://onlinelibrary.wiley.com/doi/full/10.1111/1467-9566.13280
Abstract Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia… Read more »
