Critical Dementia Network

54 resources
Posted: November 22, 2021

Positioning ethnicity in dementia awareness research: does the use of senility risk ascribing racialised knowledge deficits to minority groups?

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Abstract Over recent decades, the importance of increasing dementia awareness has been promoted by charities, researchers and governments. In response, a large body of research has emerged that evaluates the awareness of different populations. One such population are minority ethnic communities. Associated studies typically conclude that minority ethnic groups have a poor awareness of dementia… Read more »

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Posted: August 24, 2021

Transing dementia – Rethinking compulsory biographical continuity

Marjorie Silverman + Alexandre Baril

Using theoretical tools from trans studies and disability/crip studies, Marjorie Silverman and Alexandre Baril reconceptualise the self in the context of dementia. The article, published in Journal of Aging Studies, illustrates that most dementia discourse, scholarship and intervention emphasises a maintenance of the pre-dementia self.

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Posted: May 2, 2021

Human Rights and the Confinement of People Living with Dementia in Care Homes

Linda Steele

Linda Steele, Ray Carr, Kate Swaffer, Lyn Phillipson, and Richard Fleming authored ‘Human Rights and the Confinement of People Living with Dementia in Care Homes’ in the Health and Human Rights Journal volume 22(1), June 2020.  

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Posted: May 2, 2021

COVID-19 and Sites of Confinement

Linda Steele

Sara Dehm, Claire Loughnan and Linda Steele authored the article ‘COVID-19 and Sites of Confinement: Public Health, Disposable Lives and Legal Accountability in Immigration Detention and Aged Care’ in the UNSW Law Journal volume 44(1) in April 2021.

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Posted: April 28, 2021

“I was the Woman, he was the Man”: dementia, recognition, recognisability and gendered subjectivity

Linn Sandberg
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Subjectivity is a widely explored topic in dementia studies, in both the humanities and the social sciences. Persistent discourses of “a loss of self” in dementia have been challenged by scholars, who argue for the need for continued recognition of the person with dementia and that subjectivity in dementia may be sustained. So far, however,… Read more »

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Posted: November 23, 2020

Forgotten Wishes: End-of-Life Documents for Trans People with Dementia at the Margins of Legal Change/ Alexandre Baril, Marjorie Silverman, Marie-Claire Gauthier and Maude Lévesque

Linn Sandberg

Literature on the topic of trans older adults has documented a few anecdotal cases in which some trans people living with dementia forgot they transitioned and reidentified with their sex assigned at birth (“detransition”). Trans commu- nities and their allies have encouraged trans people to engage in end-of-life planning, including the preparation of legal documents… Read more »

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Posted: August 12, 2020

Regulating, fostering and preserving: the production of sexual normates through cognitive ableism and cognitive othering

Linn Sandberg

People with cognitive disabilities are commonly positioned as risky sexual subjects. This article discusses the discursive production of sexual normates in the form of desirable and normative able-minded sexual subjects, in scientific research on the sexuality and cognitive disabilities of younger and older individuals (in particular those with dementia). We identify three interrelated discourses: regulating… Read more »

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Posted: May 27, 2020

Dementia and the Paradigm of the Camp: Thinking Beyond Giorgio Agamben’s Concept of “Bare Life”

Lucy Burke

This essay discusses the use of analogies drawn from the Holocaust in cultural representations and critical scholarship on dementia. The paper starts with a discussion of references to the death camp in cultural narratives about dementia, specifically Annie Ernaux’s account of her mother’s dementia in I Remain in Darkness. It goes on to develop a… Read more »

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Posted: April 28, 2020

Safe and Just Futures for People Living with Dementia in Residential Aged Care

Linda Steele

The ‘Safe and Just Futures for People Living with Dementia in Residential Aged Care’ project looked at common aspects of the environmental design of residential aged care facilities that detrimentally impact on the quality of life and human rights of people living with dementia. The project was funded by a Dementia Australia Research Foundation Victoria… Read more »

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