“Nothing About Us Without Us”: Involving People with Dementia in Qualitative Research”
Abstract People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting them into studies as participants, researchers often use surrogates-family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research. The article is available at https://rdsjournal.org/index.php/journal/article/view/1034