“Nothing About Us Without Us”: Involving People with Dementia in Qualitative Research”

Date added: November 17, 2022
Areas of interest: ,
Authors: Margaret Oldfield


People with dementia are increasingly asserting their rights as people with disabilities. Yet instead of inviting them into studies as participants, researchers often use surrogates-family members or healthcare professionals. I address this problem by bringing together qualitative methodologies that involve people with dementia directly in research.

The article is available at https://rdsjournal.org/index.php/journal/article/view/1034