Joy Watson – dementia and experiences of engaging with the state

Joy Watson is a founder of Dementia Havens and an ambassador for the Alzheimer’s Society. In 2016 Joy was recognised with the Prime Minister’s Points of Light Award and is an Honorary Doctor of the University of Salford.

Following the changes to move claimants on Disability Support Allowance to Personal Independence Payments (PIP), Joy recently found her payments were stopped after a health worker assessment. With this decision to the fore, Joy discussed her experiences of engaging with the state and being penalised for living well with dementia.

Joy also talked about the effect austerity has had on her ability to “live well”, undermining the positive role her support network plays in this.

Please watch the video below for Joy's full presentation.